“There is no greater agony than bearing an untold story inside you.”
― Maya Angelou
A week ago, I “came out” on social media about my mother’s Alzheimer’s disease. I started a fundraiser for the Alzheimer’s Association. I’ve been overwhelmed by the response. With more than 40 donations, I have surpassed the goal of $1600 symbolizing the 16 hours of daylight on June 21st. Feeling helpless to do anything to stop the progression for my mother, the stories coming from others have touched me deeply and helped me to feel part of a loving community.
In Facebook messenger, when I finally figured out that J was a high school friend whom I haven’t seen in 44 years, I sent her a thank you message. She responded.
Hi Margaret, I was happy to make a contribution. Lewy Body Dementia stole my husband from me (18 months ago). Praying for a cure for any form of dementia. Blessings to you as you navigate this world with your mom.
J from Facebook Messenger
It took me a while to figure out the website, but donors are able to leave me a message. This one came from Linda Baie, a blogger whom I’ve never met face to face but have known online for years.
My husband died from Parkinson’s Disease but he, and I, also had the long journey of the secondary part, Parkinson’s with Lewy Body Dementia, so like Alzheimer’s. I’ve often thought of it as a long goodbye. Best wishes to you, Margaret, and to the family in your sad journey.
Linda Baie
The donations have come from far and wide, close family members to writing friends and even from a former student. When you reach out, come out with the truth, you never know that there are many people in the ocean with life vests to offer, stories of their own struggles connected to yours.
If you have an experience with Alzheimer’s or something similar, please leave a comment telling me your own story. You can also reach out by email or messenger. Our stories are important and connect us.
Reflections on the Teche 